Last year I spoke about taking our son to a neurologist for his tics. If you want to catch up on that story first, head over here. Once we confirmed he had a tic disorder, which I was sure of for a good year, we continued on as “normal”. We did not bring the tics to our son’s attention, and we also chose not to medicate him because we feel he’s too young, and there is no cure for the disorder anyway.
When he was diagnosed it was because of my persistence, not because he had noticed. Fast forward almost a full year, and he has begun to “notice” his tics. His blinking, eyebrow raises, and clenched jaw tics have become more intense and noticeable to myself and Nate. And now our lil guy has started making comments like, “I can’t stop my eyes” or “I can’t stop blinking”. He will even hold his eyes to try to stop them from tic-ing. We simply tell him to relax and sometimes massage his temples to help in the relaxation process.
It is so frustrating to watch my young son go through this. As I mentioned in my other post, I grew up with a brother with Tourette Syndrome and watched all the issues my brother faced as a young child growing up. And now to see my own son go through the same thing is heartbreaking. I wish it were me! I wish I could take this away! Why did I have to be a carrier and pass this onto him?!
He is so vibrant and smart and full of life. I don’t want this to affect him in a negative light. I saw how my brother became more introverted as time went on. I don’t knock my parents for the way they handled my brother’s case. They only did what they felt was best, and what was recommended by doctors. However, I won’t be informing his teachers, and class each year about his condition. I don’t want him to be looked at differently, or treated as such. I want his peers and everyone else to form their own opinions of him naturally.
We barely broach the topic at home because we choose not to make a big deal about it. He is a normal child. However, he has become more aware of them. He has not asked questions as to “why” he has tics, however I am sure that’s only a matter of time. I just pray as school begins this August that he continues to see himself as any other 5-year-old and goes on being the extroverted child we know him to be.